Please Fund Research and Community Out Reach for Sickle Cell Disease

Sign the Petition : 111 Letters and Emails Sent So Far

Too many Americans suffer from Sickle Cell Disease. We need to find a cure for Sickle Cell Disease Today. Please sign this petition asking your elected officials to support funding for Sickle Cell Research and Sickle Cell Organizations so that they can work to find a cure for Sickle Cell Disease and support the hundreds of thousands Americans who are affected by the challenge Sickle Cell Disease places or individuals,families,friends and colleagues. Sickle Cell Disease effects the organs and is a very painful disease. Please show members of Congress that this disease is non discriminating and affects many Americans. Everyone Knows Someone! Make a Difference Today!
Please Fund Research and Community Out Reach for Sickle Cell Disease

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People signing the "Please Fund Research and Community Out Reach for Sickle Cell Disease" petition

  1. Tue., Oct. 27, 2009 1:22 PM    link Kurt T. | Hyattsville, MD

  2. Mon., Sep. 28, 2009 9:19 AM    link vonetta y. | Washington, DC

    my mom just past away with sickle cell & we didn't know how to help her while she was still here, i hope that there is something that can be done to help others in this situation.my mom went 50 years thinking that she had the trait which all her kids have,but found out 8 yrs. ago that she had been living with the pain of the disease for 50 yrs. & yes she was in alot of pain when we were growing up i thought thats the kind of pain i was going to experience until we found out that it was actually the disease. i would wish that kind of suffering on anyone.

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  4. Fri., Jul. 3, 2009 5:19 PM    link Judith T. | Washington, DC

    I have a very talented 5 year old boy with sicle celle SS type.He spent many days in hospital,he missed many days from school.He experieced a lot of pains.We need to educate people more about this disease,we need more funding.It is very hard on parents financially.We need more assistance.Those patients are in needs of assistance,please Hear our voices.

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  6. Mon., Jun. 29, 2009 3:08 PM    link Bridget R. | Laurel, MD

    My son’s father and I were unaware that we both had the trait until I became pregnant with my son. My son has the SS trait which is the worst trait there is, because their degree of sickling and frequency of pain is greater than the other traits. As a nurse knowing the kind of damage sickled cell can cause internally keeps me up most night always wandering and worrying about which one of my son’s organs is being damaged by the sickled cells. It is difficult taking off work for weeks at a time sometimes, because my son is having a crisis just to take him to the hospital and they don’t know what to do but yet I still get a bill. the bottom line is there needs to be a cure for sickle cell no exceptions ,and until there is sickle cell patients need help from the government sickle cell is a debilitating disease and the amount of daily pain that is associated with it can be overwhelming not only for the patients but also for there families. I would love to see the gray hairs on my son's head as he watches his children and grand children playing with out having to worry about them having to live with the pain of having sickle cell.

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  8. Thu., Jun. 18, 2009 8:50 PM    link Name not displayed | Owings, MD

    Please assist in funding the continual research and community programs for those Americans with Sickle Cell Disease. I am the mother of a very talent 13 year old who suffers with Sickle Cell. The extreme pain crises he experience would break any parent heart. Many parents can not bear to see their child fall and scrap a knee; imagine a child in pain and there's nothing you can do to make it better with out pain medications. Many nights we spent in the hospitals, being subjected to doctors and nurses with very little knowledge regarding sickle cell. One doctor told me that I was an unfit mother. When my child is in pain that is the last thing he needs to hear. We need to do ALL that we can to fund research for a cure. I'm doing my part in my community, when is the people, we elected to Congress going to do their part!!! Let's Find a Cure. We need your HELP!!!

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  10. Mon., May. 25, 2009 4:22 PM    link Gloria J. | Flushing, NY

  11. Mon., May. 18, 2009 2:07 PM    link Lisa B. | Merced, CA

    I too suffer from this disease. More awareness needs to be on the West Coast. Some doctors asks me how should they treat me.....go figure!!??

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  13. Sat., May. 16, 2009 1:52 PM    link Abdelrahim G. | ,

  14. Sun., May. 3, 2009 4:31 PM    link GISELLE H. | Brooklyn, NY

    PLEASE HELP US LIVE A STRONGER, LONGER AND PAIN FREE LIFE!!!

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  16. Thu., Apr. 30, 2009 7:39 PM    link Kirsten P. | Vestal, NY

  17. Mon., Apr. 13, 2009 4:47 PM    link Kellie G. | Windsor Mill, MD

  18. Wed., Apr. 1, 2009 9:13 AM    link Yvette M. | Houston, TX

    I have a best friend who suffers from Sickle Cell Disease. I am her guardian angel and advocate. I want to help her and others, but we cannot find a support group in Houston or a Foundation. Please help!

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  20. Fri., Mar. 27, 2009 3:05 PM    link Name not displayed | Missouri City, TX

  21. Mon., Mar. 9, 2009 5:15 PM    link Alicia C. | Florissant, MO

  22. Mon., Feb. 23, 2009 1:10 PM    link Name not displayed | Burtonsville, MD

    I have known several extended family members and friends who have suffered from this disease, including 3 cousins who passed away in their late teens or early twenties. Though America has known about Sickle Cell throughout my lifetime, the effort to eradicate the disease or at least arrest it, has been inadequate when compared to other well known ailments.

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  24. Mon., Feb. 23, 2009 12:58 PM    link Name not displayed | Lynbrook, NY

  25. Mon., Feb. 23, 2009 10:55 AM    link Carol G. | Chicago, IL

    Carol D Gray, my son, Rostell C King, has the trait. I did not know this until his birth. Later, I discovered that my father carried the trait only as well. Silence is not the cure.

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  27. Mon., Feb. 23, 2009 10:00 AM    link LaWanda W. | Temple Hills, MD

  28. Thu., Feb. 19, 2009 10:14 PM    link Cawana W. | North Charleston, SC

    I have a 6 year old daughter with SS and it is definitely difficult watching her suffer in pain during her crises (as well as ER and hospital visits). It would be a blessing for more assistance and support for families and adults/children who are dealing with this disease. Also, there should be more awareness of this disease in all communities so there is knowledge and understanding.

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  30. Fri., Feb. 13, 2009 9:22 AM    link Alma G. | Fort Washington, MD

    I am a 49 year old living with sickle cell disease in Prince Georges County. I have struggled with this painful diseasethrough school and work. I strive to be a productive contributor to society through work community and education. Many of my adult friends with sickle cell today struggle with just the basic needs of life in caring for themselves. This dibilitating disease does not necessarily effect our mental capabilities it affects our physical abilities. We have the drive to work and care for ourselves but many times our work attendance is irregular due to crises, most employers do not understand. I have been fortunate in getting treatment through NIH but that access is very limited. Our community is certainly in need of some local awareness and support. Thanks for the forum.

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